Trustee - Treasurer

CHRONIC LYMPHOCYTIC LEUKAEMIA SUPPORT ASSOCIATION UK (CLLSA)

Who we are

CLL Support is a patient-led UK Charity (reg.no: 1178482; web: cllsupport.org.uk/). Our mission is to support and empower patients with Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL), their families and supporters, through education and access to reliable, relevant and current information. (CLL and SLL are slightly different forms of the same disease.) We work closely with the UK CLL Forum for scientists and researchers working in this field and represent CLL and SLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE).

Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, most of whom have been personally affected by CLL or SLL. Currently, we have more than 3,000 members. These are exciting times for our community as research continues to open up ever more effective treatments. We are also very involved in supporting our members’ wellbeing. It can be very difficult to come to terms with having an incurable cancer which may never need treatment, not only for those diagnosed but, we find, even more so for their partners.

We are looking for a Trustee-Treasurer to join the trustee team and help keep this patient-led charity at the forefront of CLL developments. The Trustees meet online 6 times a year online and occasionally in person. The Charity employs two part-time members of staff to provide the administrative support we need. Our annual income is of the order of £150,000 and our reserves represent 15-18 months’ expenditure.

The Role of the Trustee – Treasurer

The role of the Trustee – Treasurer would be to oversee the general administration of the Charity’s affairs, not only around financial matters but also in respect of the regulatory requirements of the Charity Commission. The Trustee - Treasurer will be a key member of the Trustee team. For this particular role, we feel that sympathy with our aims and relevant experience are more important than having personal experience of CLL or SLL.

We recently introduced a cloud accounting package and have both internal and external bookkeeping/accountancy support to carry out the routine work. The areas where the Trustee-Treasurer would have oversight include Financial records, Day-to-day financial operations, Oversight of Payroll, Management of the Charity’s reserves, Budgeting and annual accounts, Regulatory matters.

For further information

Former ICAEW President Dr Hilary Lindsay, herself diagnosed with CLL in 2009, joined the Trustee board four years ago and is currently Chair of the Trustees. She would be delighted to talk to anyone who might be interested in knowing more about CLL Support and the Trustee – Treasurer role. Please email her at .

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